Sunday, March 3, 2013

"Last of the Summer Wine: Home Comfort" & Sad Thoughts

I got to read Peggy Poe Stern's latest book on my Kindle. I have become addicted to that little e-reader. I find it hard to read paper books now. The Kindle lets me adjust the text size to my liking. With my eyesight not being what it was, this is a real advantage.
I enjoyed the book. It wasn't my favorite of Peggy's novels, but was still a good read.
We are covered in snow here on our little hill in Mountain City. We have had flurries all day but no real accumulation.
My latest immunology appointment was not my best. Dr. Kazmier had been to an immunology conference and had spoke to the "experts" about my case. It seems there is only one drug left to try, and it has serious side effects. We are trying stopping a large percentage of my medications. It is one last thing to try before I have to think about trying the bad drug.
I have had a really bad day. I had to use my Epipen for airway swelling. This one has wiped me out more than they had been. I think maybe the medications were helping with that. It will take a few days for the medications to fully be out of my system. It is a bit scary, but if I don't try this we will never know if it might be a drug interaction causing my problems to continue.
I know that I was not on all these medications when the problems started, and I was only on Benadryl at night when I had to go in the hospital the second time for anaphylaxis. I am humoring Dr. Kazmier because he just really does not want to start me on this last drug. I think we are both afraid it won't work, and also afraid that if it does the side effects will be devastating. He is really worried that it may push me into complete renal failure and require me to be on dialysis. It is really not a good thing either way.
As is usual for me, when I am faced with these big changes, it affects my mood. I really feel like I am a hopeless case. I know there are people who have been living with IA for years; one since the 70s. They know how I feel, but it is impossible for anyone else to completely understand. My friend Evelyn, who lives in Malaysia, suffers much more than I do. She just passed her 4 year IA birthday. Below is a link to her blog post on her "birthday". She expresses how this disease feels so well.
Sad Birthday Evelyn. Wishing you a good night's sleep.

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