Sunday, March 16, 2014

The Well

Living with IA is like falling in a deep well. You struggle to get a little farther up from rock bottom, and for some unknown reason you hit the bottom again. It is hardest mentally when you have had a little time to think you are almost at the top and then you fall right back to the bottom again.

IA could be compared to being stuck living as a character in a video game too. LOL  Imagine seeing if you can stop your man's face from swelling, his body becoming covered in a rash, his turning blue,  his tongue swelling so much it sticks out his mouth etc. Oh - and don't forget the lovely urinary incontinence, vomiting and diarrhea. Getting an Epipen would be getting a new life.

Scott was back in the hospital for 8 days in January. He had a perforated colon and abdominal abscess. They were able to get the infection cleared up and they are trying to get his Crohn's settled down so they can go in and remove the bad section of the colon. They will remove the sigmoid area this time. He had his ascending colon removed in 2004. He is now on three drugs for Crohn's, including Humira.

As always, we are very grateful to my family and our friends who helped us get through the trials of January. Anything from bringing me a peach tea to helping me carry things to the car, taking me to lunch, taking care of Carmen, money, and thoughts and prayers are so appreciated. 

Since the last update, we have a new grandson. Finn Palmer Harris arrived on February 5th. He is very healthy and growing fast.


 
I was able to spend two weeks spoiling the boys. The make me so happy. Being their "Mammae" is the best thing I have ever done in my life. Hearing Bentley's little voice saying, "Love you Mammae.", makes the darkest day bright.